Archive for the ‘Autism/PDD’ Category

Muslims, Methodists and Me

September 13, 2013

 

PEACE

 

I have had a fairly broad religious education. I grew up in the 1950s in a predominantly Jewish neighborhood, and played primarily with Jewish friends as a young child.  In fifth grade, I had the privilege of being admitted to an independent girls’ school, where I helped fill the quota of two spots allotted to Jewish students.  When I moved away five years later, my space went to another Jewish student.  In my Episcopal high school, I attended chapel daily, sang in the choir, and still know three verses to “Onward Christian Soldiers.” In graduate school at a Jesuit college, I met my first nun. I’ve studied both the old and new Testaments, and can recite many psalms and Biblical passages.

However extensive my experiences, I was not prepared for the profound religious connections I had in 2013.  This year I was embraced, both spiritually and physically, by two amazing groups: Muslim parents in Kuwait launching a center for their young adult children with disabilities and a Methodist ministry sponsoring an autism conference closer to home.  If you have been following my blog, you know about the former. The latter occurred this summer on the top of a mountain at a heavenly place called Jumonville, a retreat center an hour from Pittsburgh, where, on a clear day, you can see three states!

“Do they know you’re Jewish?” was one of the first questions many people asked when I told them about my invitations to go to Kuwait and be the keynote speaker at this year’s Autism Initiative.  “I think so,” I said, wondering if it mattered.  It didn’t.  No more than my being female, having green eyes, or being over 60.  In fact, it mattered so little that, at times, I felt closer to these warm, loving people than I did to many of my own faith.  What did matter was that regardless of our beliefs about God, we had the same basic values, philosophy and goals toward people with disabilities: that every individual is deserving of respect and love, and the opportunity to thrive, not simply survive.

What surprised me was that no one proselytized, and that many asked questions about Judaism, attempting to broaden their own religious education.  A few times I was embarrassed at how little I knew; most of all, I was proud of my heritage and its teachings that we all worship one God.  When I looked at the faces of the men and women in traditional garb in Kuwait, they looked indistinguishable from those of the religious Jews in my childhood neighborhood.  We were, if fact, distant cousins whose ancestors, many centuries ago, had wandered in the desert together.

The biggest message was that of acceptance.  Few I met were ashamed of or embarrassed by their kids.  No one watching the interactions among these families – mothers, fathers, grandparents, siblings, aunts, uncles and cousins – could have any doubt about the total inclusion of their relatives with special needs in the warm loving embrace of their families.

On the top of Jumonville Mountain I witnessed the same loving acceptance that I saw in Kuwait.  Prayer was a major healing tool in both locales, and science confirms its power.  While unconditional acceptance of our family is an enviable trait that many of us strive hard to attain, a tough question that kept nagging at my brain is this, “Are they maybe TOO accepting of their children as they are? And can unconditional acceptance interfere with seeking out therapies and treatments that can enhance potential?

I have spent a long career promoting a healthy diet, nutritional supplements, daily movement and exercise, glasses, environmental accommodations and more recently assistive technology.  These are, in many cases, life-altering interventions. I will never forget the non-verbal Kuwaiti young woman with autism who, given an iPad, was communicating within minutes. Then there is the untoilet-trained ten-year-old with alternating diarrhea and constipation, who had normal bowel movements after three weeks on a gluten- and casein-free diet.  And what about the sociable, verbal 30-year-old man with Fragile X syndrome who could not walk a straight line or catch a ball until fitted with prism lenses that corrected an eye turn?

Religion, no matter which one, and the latest medical science are indeed compatible partners.   I am grateful for these invitations, and in retirement look forward to continuing to delve into some of the most rewarding experiences in my life.

Stress

February 17, 2013

Stress from Google

Everyone is stressed! The fewer the stressors, the more opportunities for learning and development for children of all ages. Our goal is to identify and eliminate as many stressors as possible.

Environmental – Our homes and schools are full of stressors.
o Toxic Chemicals – Lead, mercury, antimony, aluminum, and other “heavy metals” reduce immunity, and interfere with the body’s ability to perform its many functions. Lead is “old news” and we know that any amount is unsafe for cognitive development. Every child should have lead levels tested.
Mercury, antimony, and aluminum are the “new” toxins that are also showing up in the bodies and brains of children with all types of delays. Their sources are power plants, ground water, petroleum plants, dental amalgams from the mother, vaccines, flame retardants, cookware, and other unlikely places. Read more about these metals here  and here.
Green your building with non-toxic materials for flooring, paint, cleaning supplies, building products, art and office supplies.
Chemicals from disinfectants, cleaners, building materials and other supplies “off gas” and when a person breathes them, they are toxic to the body. They are especially harmful to people with compromised immune systems, and those who have asthma.
The standard benchmark for design, construction, and operation of high-performance green buildings is LEED, which stands for Leadership in Energy and Environmental Design and was developed by the U.S. Green Building Council (USGBC). Find a green building in your city, learn who greened it and consult with them.  Here is a handbook on how to green an existing building.
o Air Pollution – Open the windows when possible. When too hot, make sure air conditioning equipment is clean and not moldy. Use HEPA (an acronym for “high efficiency particulate air”) indoor air filters throughout building. HEPA filters can trap a large amount of very small particles that vacuum cleaners recirculate back into the air.
o Fluorescent lighting – Replace with bulbs that do not make noise or flicker. Use bulbs that offer the right color of lighting. Read this article on lighting.
o Noise – Play soft, gentle music, such as Mozart, which is the same rate as the human heart beat. Read more information  on “The Mozart Effect.”
Biological – Our bodies are toxic waste dumps too. Reduce our exposures.
o Water – Good hydration is essential for learning. Ensuring that our drinking water is pure is one of the most important steps we can take for children with developmental delays. Water should be available and offered frequently. Use water filters throughout the building.
o Diet and Nutrition – What kids are eating can be the determining factor between health and sickness. This is especially true for children with developmental delays. Sugar is one of the most damaging of all products ingested. Read more about it here.
Encourage families to cook and not eat “fast food.” Help them understand the importance of a varied diet of natural foods, such as fruits, vegetables, good quality protein and good fats.
Research is showing that eliminating some foods from kids’ diets helps their development and learning tremendously. Many foods are shown to cause ear infections. Two types of foods that are particularly problematic for kids with delays are those containing gluten, the protein from wheat, and casein, the protein from dairy products. Read about gluten and dairy in many websites containing “gfcf.”
Children with Down syndrome have especially high nutritional needs. A company that specializes in the care and feeding of those with this genetic syndrome is Nutri-Chem, in Ottawa, Canada. The founder, Kent MacLeod, a pharmacist has written a book on the importance of diet and nutritional supplementation: Down Syndrome and Vitamin Therapy.
o Allergies – Many kids with developmental issues have allergies, not only to airborne particles, insects, and other environmental pests, but also to foods. Some allergies are life-threatening and immediate, such as shellfish and peanuts. Others are troublesome, causing fatigue, rashes, respiratory and digestive problems, and are delayed, taking hours or even days to show up. Read about the different kinds of allergic reactions here.

Physical – The physical body needs a good sensory diet and sleep to reduce stress.
o Movement – Use every opportunity to move to learn. Little children’s bodies learn by moving and using their senses of touch and having their muscles and joints take in sensations. Two good books about the importance of movement in learning are, Smart Moves: Why Learning is not all in Your Head, by Carla Hannaford, and Physical Activities for Improving Learning and Behavior by Cheatum. Obtain the workbook “Begin Where They Are,” with therapy activities, from http://oepf.org/product/begin-where-they-are-0.
o Reflexes – Over 100 different reflexes are programmed into the body to get the body moving appropriately. If demands on the body are premature, before the reflexes are fully integrated, then delayed development can be the result. Learn about reflexes through an intensive training session. Learn more about reflexes at http://masgutovamethod.com
o Vision – While some children have eyesight problems that can be corrected by glasses, others have vision issues, such as the two eyes not working together, in conditions called exotropia, esotropia and strabismus. Motor activities that are the foundation for vision development and the body must be strong to support binocular vision. The relationship between vision and learning can also be a training session for those at the center. To learn more about vision, read this.
A book explaining the role of vision in learning is How to Develop Your Child’s Intelligence by Getman.
o Hearing – Listening is to hearing as vision is to eyesight. Although a child can hear, his brain may not process what it hears. Several “listening programs” are available to help children give meaning to what they hear. Look here for understanding of this area.
o Sleep – Everyone needs uninterrupted sound sleep for their bodies to heal and repair. Pre-school aged children require 11-12 hours of sleep per night. Young children with disabilities might need more if they are contending with health issues. Help parents and teachers understand their kids’ need for rest periods. Read this.
Educational – Schools are often unknowingly a source of stress too.
o Inappropriate curriculum – All children learn in a predictable developmental sequence, just as they learn to walk before they run. We discourage teaching rote concepts such as the alphabet, counting and naming to young children. These skills will emerge when a child is developmentally ready. Here is an article on this subject.

o Non-ergonomic furniture – Sitting in small chairs when the trunk and head are not stable only results in compensatory techniques like tilting the head and rotating the hips. Replace hard, wooden chairs with soft gym mats, beanbags, cushions and pillows to help children develop core strength.

Emotional – Families have so many situations that add stress.
o Unreasonable expectations – This stressor is tied to the one above related to an inappropriate curriculum. Children want to please adults, and when they cannot comply with expectations, they become discouraged. Make sure that requirements are consistent with a child’s developmental age.
o Worries and fears – Some kids like being around many people; others find crowds difficult. It appeared that many of the children we saw were somewhat fearful of having so many adults watching and prodding them. Observations should be limited to one or two adults at a time until a child is comfortable emotionally.
o Family Issues – Today’s families, especially those with multiple children with disabilities, are under a great deal of stress. They need support systems to help them cope. Offer parent and sibling support groups where adults and children can share their experiences and learn from each other.

Behavioral – Treating symptoms is never the right answer.
o Medications – Pharmaceutical and over-the-counter drugs all have side effects which can cause behavioral symptoms as benign as restlessness and irritability, and as serious as rashes, seizures and fevers. They can also interfere with sensory processing, such as cause double vision and tactile defensiveness. Instead of treating symptoms, look for natural alternatives to prescription drugs, and search for underlying causes of illness, such as food allergies and toxicity,.
o Screen Time – While young children are attracted to the bright colors, sounds and movement of objects on computers, iPads, and iPhones, these two-dimensional objects are not good for development. To learn, children need to touch and see objects in three dimensions, not on flat screens. Please consider replacing electronic toys with playthings made out of natural materials. For non-verbal children, speaking with real people is superior to speaking to a machine. Psychologist Jane Healy is the expert on brain development and screen time. Please refer to her books, Failure to Connect: How Computers Affect Our Children’s Minds — and What We Can Do About It, and Your Child’s Growing Mind: Brain Development and Learning From Birth to Adolescence.

Summary
Even with loving, supportive parents and teachers, the our lifestyle and environment add stress to the lives of our children with developmental delays. Start with the physical environment, and reduce exposures to noise, light, toxins and sensory overload. Every time you replace a product, purchase one of higher quality with fewer toxins. Gradually, stressors will reduce, and the home and school will be more conducive places for learning and growing.

Kuwait Revisited: Offering Help to Those with Severe Disabilities

January 3, 2013

Kuwait Dubai Jordan and Erika's wedding etc 441Kuwait Dubai Jordan and Erika's wedding etc 241artists

Right before Christmas, I returned from my second mission to Kuwait. Now that the holidays are over, I want to share my impressions. I made my first trip there in May, when I was invited to assist with the launch of Center 21, whose motto is “putting the able in disabled.” This enormous undertaking is the brainchild of devoted parents who want their son and others to continue to learn and grow despite the fact that they are no longer eligible for educational services. Center 21 will provide therapeutic and recreational services for the thousands of young adults with disabilities in that tiny country squished precariously between Iran, Iraq, and Saudia Arabia.
The Hosts
Lamia and Nabil and their children Abadi, Saud and Nadia, opened their home and hearts to us. Abadi, the inspiration for Center 21 remembered me, and followed the adult strangers around like a puppy dog, high fiving us over and over again. He was clearly communicating his welcome! His younger siblings, one in college, the other a high school senior, soaked up our knowledge, learning from us at every opportunity. One of Center 21’s volunteers, Fawzi, was our driver, tour guide, technology consultant, and caterer, anticipating and taking care of our every need from sightseeing to late dinner. My team of experts instantly fell in love with our hosts’ warmth and generosity. They made this venture so comfortable and enjoyable that it hardly seemed like work!
The Team
This trip had one repeat member, my long-time friend and colleague, Aubrey Carton Lande, occupational therapist, award winning musician and horsewoman. Accompanying Aubrey and me on our excursion was Mary Rentschler, a specialist in Masgutova Neurosensorimotor Reflex Integration (MNRI®). Completing this international team were Scandinavian neuro-developmental optometrists Thorkild and Lena Rasmussen, whose unfathomable job it was to evaluate and prescribe treatment for the undiagnosed vision issues rampant in the special needs population. As team leader, my prodigious responsibility was as case manager, educator and priority-setter. What a humbling challenge for us all!
The Mission
Whereas in May our emphasis was on visiting schools, government agencies and private organizations, this trip focused on providing individual assessments and services that could improve the quality of the lives of those with special needs. We set up serial evaluations with each expert, followed by group explanations of the role of each area in remediation, and the importance of continuity, support and follow-up by the families. In addition, similar to our previous trip, we delivered an evening conference in a magnificent ballroom, followed the next night by small group discussions on prioritizing therapies, sensory diets and reflex integration.

The Culture
Whoever would have thought that a nice Jewish girl from Pittsburgh would come out of retirement to hang out, joke with, and consult to Muslims in Kuwait? We bonded as humans with common goals and philosophies that instantly overrode our religious, educational, language, fashion and cultural differences. When speaking with parents, sometimes with a translator, my brain quickly disregarded the traditional dress worn by some, seeing only the love in their eyes, and the fear in their hearts. Kuwaiti parents are no different than my clients in the States.
The Disabilities
After working for over 40 years with families of those with special needs, I thought I had seen it all. But nothing prepared me for the complexity of the issues facing these Kuwaiti families. While the country is oil rich, it is resource poor. When a young child receives a diagnosis, little remediation is offered. “Take your child with a disability home and love him,” most families were advised.

We met many individuals age four through the mid-twenties with Down syndrome, cerebral palsy, autism, and global developmental delays. Because Center 21 is planning to have an outpatient facility providing occupational and speech therapy services to all ages, younger kids were included in our case load. Many parents had not one or even two children with diagnoses; several had three of eight or so children with serious disabilities under one roof. Only the loving care of live-in nannies from countries such as the Philippines and Nepal helped them cope.
Just like their American counterparts, families in Kuwait are grateful for and blessed by all of their children, regardless of ability. However, because prenatal testing is not performed in Kuwait at the drop of a hat as it is in the US, children with genetic syndromes are common, especially in families where marriage of cousins is not uncommon.
In the United States an estimated 92% of all women who receive a prenatal diagnosis of Down syndrome choose to terminate their pregnancies, according to Dr. Brian Skotko, a pediatric geneticist at Children’s Hospital Boston. In the absence of prenatal testing, the United States would have experienced a 34 percent increase in the number of Down syndrome births between 1989 and 2005, Skotko estimates. Instead, 15 percent fewer such babies were born during that time, representing a 49 percentage point difference between expected and observed rates, according to Skotko’s research review. Add to that other screenings, such as those for over 200 other known genetic syndromes, such as Tay-Sachs, that occur in specific populations, and the number of genetically different births is reduced even further.

The Children
Each expert spent more than an hour with about 20 children, a few of whom I introduced you to in my previous blog. For the repeats, we had the opportunity to delve more deeply, and to carve out a prioritized plan. Here are some of the complex cases we saw:

  • Dallal is the 16-year-old non-verbal young lady I introduced you to in my previous blog, who frequently rips off and breaks her glasses. In May, I had suggested a less strong Rx, blatantly practicing optometry without a license. Because she continued to reject even the weaker prescription, this summer her father decided to abandon the glasses altogether.
    The examining optometrist determined that Dallal’s eyes turned out, a condition called exotropia, and that even the lower Rx stressed her brain to keep her vision binocular. Dr. Lena thus recommended no lenses at all, and replaced her glasses with some motor activities designed to strengthen her neck and adjacent muscles, thus allowing her eyes to work together more efficiently. In addition, Aubrey worked with Dallal’s parents to design a sensory room that provided her with deep proprioceptive input and calming activities to lessen her frequent agitation.
  • Abdullah, also 16 and non-verbal, has journeyed outside of Kuwait with his devoted parents in efforts to improve function and skills. His calm demeanor and healthy appearance are unusual for a male with an autism diagnosis. His mother shared that he benefitted greatly from a gluten- and casein-free diet, and had undergone a detoxification program. Yet, he experienced both extreme tactile and auditory defensiveness that prevented him from relating to strangers.
    Addressing the tendon guard and Babinski foot reflexes calmed his extreme tactile defensiveness. Mary is hopeful that with continuous work, he will become available for other reflex repatterning techniques and eventually be ready to engage positively and communicate with others.
  • Mohammed is a teen with Down syndrome who looks more like nine than his 15 years. He has a winning smile that makes those around him melt. Totally loved and over-indulged by his family, he is courteous and compliant. He can tie his shoes, speak in sentences, and even read and write a little.
    His glasses prescription for extreme myopia was also found to exacerbate his visual skill development, and was reduced. Work on his large motor skills quickly improved his grasp of a writing implement and his speech. Discussion about the importance of immune system boosting foods and supplements and a referral to Nutri-Chem and the book Down Syndrome and Vitamin Therapy by Nutri-Chem’s pharmacist founder, Kent MacLeod, rounded out his program.
  • Achmed is one of three boys with autism in a family of eight. His exhausted mother shared matter-of-factly that in addition to coping with her sons, she is the only daughter of a mother on daily dialysis, and is having some health problems of her own. Referencing the work of one of my heroes, Dietrich Klinghardt, MD, the alarm went off in my head for mercury poisoning. Klinghardt implicates mercury whenever a family has multiple children with autism diagnoses. I asked Achmed’s mother about her dental status, and she began to weep, showing me a mouth full of silver amalgams mixed with gold crowns: a veritable petri dish for disease. We discussed the importance of working with an expert in detoxification who knew how to remove mercury safely. Without biomedical intervention, this family cannot get well.
  • Yasmeen is a four-year-old whirling dervish with a single eyebrow that crosses her forehead. In an hour’s time she never stopped moving or emitting a high pitched scream. She eats corn flakes with milk for breakfast, spaghetti for lunch, and pizza for dinner, snacks on crackers and cookies all day, and washes everything down with milk. She has a brother nine months old who is covered in eczema. Her young parents, who are biologically related, were told that their daughter is autistic, and that nothing can be done for her. Last year her teacher suggested casting her arms and putting mitts on her hands to prevent her from self-abusing and touching others. Now that these torture devices have been removed, her hands are so weak, that she cannot use them functionally.
    Yasmeen, like Achmed, is physically sick. I have no doubt that she is gluten and casein sensitive, and is ravaged with a combination of toxins, gut bugs, viruses, parasites and metals. All the sensory therapies and external interventions in my tool chest are impotent in trying to improve her function. We must start with nutrigenomic testing such as offered by Dr. Amy Yasko, to see what type of genetic abnormality this family is carrying, and offer supplements to correct the faults. Somehow, some way, we must improve her diet and get some nutrition into her. This case is urgent; the younger brother is another statistic waiting to happen.
  • Hussein is a young adult with severe cerebral palsy. He has little use of any of his limbs, and very poor head and eye muscle control. One of his legs is permanently perched in his lap, with the knee bent. He does not speak, but appears to understand what others are communicating, according to his sister, who is his advocate. He wears diapers, and is totally dependent upon caregivers for eating and moving from place to place.
    Reflex work on Hussein’s feet left his muscles uncontracted for the first time in his life. He was able to release his leg to an almost normal position. He smiled broadly. His sister started to cry, and promised to continue the prescribed therapy daily.

The Causes
Why so many severe cases with such complex needs? Maybe it started with exposure to the chemical soup from the Gulf War oil fires, compounded by unknown viruses and bacteria, and exposure to heavy metals, mercury and who knows what else, that tweaked their genes in a unique way. Add an extremely aggressive vaccination schedule, the ubiquitous presence of American fast-food restaurants, and stressors such as a well-meaning early intervention program that gets kids walking before their bodies are ready, and you have the “total load.”

The Healing
In the short time we had, we introduced that concept that the body’s top priority is staying well, and that speaking, relating and learning had to take a back seat to digestion, respiration and detoxification. We spoke of the success many families we knew in the U.S. experienced when they combined biomedical intervention with sensory therapies to heal their children with autism, and to improve behavior in those with genetic syndromes and global delays.
When anyone seeks medical help at a hospital, the first step after hydrating and stabilizing the body is running tests to determine what is wrong. We urged our Kuwaiti families to follow this model. We distributed test kits from the Great Plains Laboratory to measure the basics: gut function, the presence of dangerous metals, bacteria, viruses, and parasites, vitamin and mineral deficiencies, immune system markers and more. Hopefully, parents will take the time to collect the necessary hair, stool, urine and blood to open the door to healing.
The Future
As soon as possible, we plan to set up an online network so that parents can communicate with and support each other. Furthermore, we must also appoint case managers to provide continuous education and training. Without support and frequent check-ins families can easily become discouraged and drop out.
Nabil has suggested that we return in February to follow up and continue our work. Whenever we go back, careful monitoring is essential. We need to enlarge our team to include more vision specialists, as well as experts in assistive technology, psychology and counseling.
I would also love to host representatives of Center 21 to visit the United States and see model day, residential, vocational, biomedical, sensory, vision and other programs that they can emulate in Kuwait. If you know of a program I should include in the itinerary, please let me know.
The Payoff
I can think of no more rewarding work than what I have been blessed to do this year. Stay tuned for a continuation of this journey. Lamia, Nabil and their children, Fawzi and his beautiful family, Achmed, Mohammed, Dalal, Abdullah, Yasmeen, Hussein, and the others we saw are my new extended family. I wish them and you a healthy and happy 2013.

Wonder

October 9, 2012

“I know I’m not an ordinary ten-year-old kid….I know ordinary kids don’t make other ordinary kids run away screaming in playgrounds.  I know ordinary kids don’t get stared at wherever they go… It’s like people you see sometimes, and you can’t imagine what it would be like to be that person, whether it’s somebody in a wheelchair or somebody who can’t talk.  Only, I know that I’m that person to other people… To me, though, I’m just me.  An ordinary kid.”

These are the thoughts of August (Auggie, to friends and family) Pullman, a fictitious boy who has endured 27 surgeries to correct extreme congenital facial anomalies of unknown origin.  Wonder is the remarkable first novel by R. J. Palacio that takes us with him to a private middle school, Beecher Prep, where he enters fifth grade after home-schooling for his elementary years.

The school is named for Henry Ward Beecher, a nineteenth century abolitionist defender of human rights. (How appropriate!) Beecher wrote that “greatness lies not in being strong, but in the right using of strength.”  “He is the greatest, whose strength carries up the most hearts by the attraction of his own.”

After Auggie’s parents make the difficult decision to send him off to Beecher Prep “like a lamb to the slaughter,” we learn about his heart and strengths through other, including his parents, sister, Olivia (Via, to friends and family), his principal, Mr. Tushman (yes, a little contrived), teachers and classmates.  Is it painful? Maudlin? A little. And, it is heartening and inspiring.

I have met thousands of families with kids like Auggie.  To them, their child with autism, cerebral palsy, or Down syndrome, is anything but ordinary.  Like Auggie’s parents, they see each and every child as a “wonder.”

This is beautiful story with many “talking points.”  It is book for all ages: one to be read to older elementary school kids, by middle and high school students, and by adults interested in human nature.  I recommend it strongly.

My Kuwait Adventure

June 7, 2012

It all started with an innocent email on April 12th.  “Hi Patricia. We are Lamia and Nabil from Kuwait. We have an autistic son. We met you in 1996 in Washington, DC. Do you remember us?  Our son was 5 at that time; he is 21 now. Awaiting your kind reply.”

Did I remember them?  Are they kidding? How could I forget this wonderful couple and their adorable non-verbal son and toddler daughter.  I fired back an instant reply:  “Of course I remember you!”

Minutes later, another email:  “Wow, nice hearing from you. Hope you are fine. We and a group of parents who are working to establish a center for special needs kids age 21 and above. The center was approved by the government a week ago.  It’s a big project. Therefore, we are requesting that you and other consultants whom you recommend, visit us by end of May to discuss the preliminary stages of development. We want to contact you on Skype for further details.”  I was trembling with excitement!

On Skype, we got down to business after laughing about what 15 years had done to our hair and figures.  I was given a carte blanche to put together a team.  Less than a month later, we hopped onto a United airbus, and in the middle of one of those famous desert sandstorms, landed in Kuwait.

Catching Up

Since Lamia, Nabil and I had had NO contact since 1996, they were unaware that I had run a non-profit organization for the past 15 years, written a book, or that exciting new therapeutic options existed for their son and others. They confessed that they had thought about trying to find me in the past, but only now did they ask their 17-year-old son to “Google” me.  They described their pleasure when my photo appeared on the computer monitor; their delight could hardly have equaled mine.

When I decided to wind down DDR several years ago, many asked, “Patty, what will you do now?’  I responded, “I don’t know; something will come up!” Was Kuwait where my boundless energy was headed?  To a country the size of New Jersey, over 6000 miles away, where over 3000 children born in 1991 were affected by the devastating oil fires?  All I could think of was what horrendous damage breathing all those toxic fumes did to pregnant mothers and their babies.

My Team

I asked for a week to choose my team. After making many contacts, I was really fortunate to be accompanied by two amazing women: my long-time friend, occupational therapist Aubrey Lande, and a new acquaintance, special education teacher and art therapist, Becky Rutherford. Aubrey is a Boulder-based sensory processing expert, award winning composer and musician, expert horsewoman and Watsu (a combination of aquatic bodywork, massage, joint compression, shiatsu, muscle stretching and dance) instructor. Becky, a sixth grade teacher at Beaver Run Special School in Kimberton, PA, is an expert in Curative Education and the Camphill movement, both aimed at nurturing individuals with special needs toward leading full lives. She and I met at the Camphill Symposium a year ago.  She still carried my business card in her purse, even though she was sure she would never see me again!

Our Assignment

Our mission was multi-faceted.  We were to advise Kuwaiti professionals, officials and parents on all aspects of the proposed center, including curriculum, architecture and engineering, meet and consult with a dozen families, put on a conference, and visit every government agency and non-profit organization having anything to do with autism, cerebral palsy, Down syndrome, genetic disorders and other developmental disabilities.  In a week, in 110 degree heat, with a mandatory siesta each afternoon! We hit the scorching pavement running!

Our gracious hosts accompanied us to about a half dozen schools and centers, including ones for early intervention.  In Kuwait, children are separated by disability, and the approaches are ones that go way back to the seventies. We observed toddlers sitting in hard, unforgiving chairs trying to match colors and shapes and teachers intent upon extinguishing unacceptable behaviors.

It’s a Small World After All

One of Kuwait’s top SLPs joined us and served as our unofficial interpreter.  “Dr. Lulu” trained at the University of Cincinnati, where she shared that she lived with a Jewish family.  “What was their name?” I asked, taking a stab.  Would you believe they were good friends of my family?

One family shared a file folder of reports on their daughter, including a summary from a consultant in Baltimore who had met with them in 1994 when the parents sought medical advice at Johns Hopkins.  The consultant had not seen the child, but took a history and wrote out her recommendations: 1) Begin a gluten-free, casein-free (GF/CF) diet. 2) Use supplements, including omega 3 and probiotics, 3) Have the child evaluated by  an occupational therapist with background in sensory issues, 4) Get an evaluation by a developmental optometrist, and 5) Contact Patricia Lemer and join Developmental Delay Resources!  I nearly feel off my chair!  Although the report was dated May, 1994, it could easily have been written today.  The same recommendations were appropriate!

Vision

Almost every individual with a disability we met had an untreated vision problem. Many had a strabismus, some a nystagmus.   Almost none wore lenses, and those who did were over-prescribed (Yes, I’m practicing optometry without a license again!).  One father told us that the eye doctor anesthetized his 15-year-old, non-verbal daughter with autism to determine her Rx.  At least once a week she rips her glasses off her face and breaks them.  He buys frames by the dozen and every weekend, combines usable components to make new pairs until he runs out of spare parts and has to buy another dozen.  I muscle-tested different strengths of plus lenses on her and recommended one that was half strength.  I’m waiting to hear the results!

Oil Rich, Resource Poor

Many think of Kuwait as a place where the streets are paved with gold and everyone wears Rolex watches; that’s a myth.  Yes, the COUNTRY is rich and takes excellent care of its citizens, but the PEOPLE are just like us.  While they do not have to pay taxes or worry about the cost of gasoline, they work hard to make a living.  They are lawyers, accountants, computer specialists, investment bankers, and business owners. If they decide to go out of the country to seek help for their children with disabilities, it’s on their own nickel.

Occupational therapy (OT) and speech-language pathology (SLP) are both emerging fields, with new master’s degrees just becoming available at Kuwait University.  Until the first classes graduate this year, like almost all other commodities, including food, cars and clothing, therapists are imported.

Multiple Disabilities

Few families have a single child with issues.  Because they live with large, loving, extended families, many homes have several children with delays, including autism, Down’s and some rare genetic syndromes I never heard of.  Obviously the chemical soup from the Gulf Wars, unknown viruses and bacteria, and combinations of heavy metals including depleted uranium, mercury and who knows what else, tweaked their genes in a unique way. I could not help but wonder if the deer tick that carries Lyme disease has a cousin who lives in date palms. Add an incomprehensible vaccination schedule that starts with tetanus shots for the pregnant mother at the fifth and seventh month, a hepatitis B shot at birth for the baby, and monthly boosters containing up to ten pathogens, and you have an immunological nightmare!

And the pattern of birth order defies everything we thought we knew about “toxic load.”  The first couple of children may be neuro-typical, then one or more with autism, and then a couple more without delays.  We also saw many females with disabilities.  What’s that all about? Are estrogen levels low?

Parents Everywhere Have the Same Concerns

Our conference attracted over 100 parents and professionals who carefully wrote out questions and waited over an hour to query us in person. “Will my child ever lead a ‘normal’ life?”  “How can I calm my two non-verbal adult sons with autism sufficiently so they can fly out of the country?”  “How can I stop my son from masturbating?”  “Two of my five children have autism and my wife is pregnant.  How can I prevent my new baby from becoming autistic?” I really struggled to find solutions that were compatible with Kuwaiti culture, religious beliefs and family values.

Center 21

Lamia and Nabil and their friends are extremely concerned about what their son will do all day now that he has no school, no program, nothing to get up for in the morning.  So they took the bull by the horns and petitioned the government for help. After a year of hard work, Center 21 was born. Kuwait is no different than the rest of the world, where those babies born at the beginning of the autism epidemic are turning 21 this year. The need is prodigious.

Center 21 will launch this summer with a small camp of a dozen or so individuals who have autism, cerebral palsy and variety of other special needs. It will gradually grow to 30 or so, and in the fall be housed in a villa. By 2013, hopefully it will expand to accommodate 100, and relocate to a renovated school building.  Hiring will begin soon for bilingual Arabic-English speaking special educators, occupational therapists, speech-language pathologists and recreational therapists.

While no statistics exist on numbers who are aging out of schools, the plan is to serve 1000 young adults with special needs by 2015 on a lively mall-like campus that includes villas, shops, cafes, a medical center, therapy rooms, art studios, a sports complex and more.  A huge undertaking?  You bet!  And if anyone can accomplish this enormous feat it is these dedicated, determined parents!

For now my team’s job is to help the Kuwaitis understand the relationships between health, sensory processing and behavior.  I think if we can accomplish that, our work will be rewarded by seeing these beautiful young adults become more functional.

Next Steps

I cannot wait to set up a testing program to evaluate, identify and prescribe treatments for the underlying biomedical issues. Thyroid problems, vitamin D, essential fat and other nutritional deficiencies are clearly rampant.  We have already started working with Great Plains Laboratory and New Beginnings Nutritionals in this regard.  A Kuwaiti pharmacy is prepared to import whatever supplements are necessary to treat underlying problems.

I hope to return to Kuwait in the fall, as the Kuwaiti’s say often, “In sha Allah.” Lamia, Nabil and their extended families were such generous hosts. We parted in tears with promises to stay in touch.  Putting together a team of developmental vision experts is my next goal.  Some lenses, prisms and simple visual therapy activities can make a HUGE difference for these young adults.  I believe we can “buy” 10-15 IQ points with these measures that take stress off the nervous system and free up energy for other functions.   Is it too late?  Never!

I am heartened by one touching “thank you” I received from a father, who told us that all he wanted was for his 21-year-old daughter to be happy.   “You taught me so much, and believe me, if I had the chance, I would be your house boy to learn from you. Friends come into our lives and go out of our sight, but they are always in our hearts.  You will be always with us here in Kuwait. You are a second family and country, and if you are in this part of the world again, please come and see us.”

It doesn’t get much better than that!

Camphill Communities: Special Places for Special People

June 1, 2011

What if there were places for adults with disabilities to live, grow and eat delicious food?  Places where they are treated with respect, participate fully in meaningful work, and live in nurturing and supportive multi-generational family-type atmospheres?  Well there are more than 100 such “life-sharing” communities in over 20 countries in Europe, North America, Africa and India. They are called Camphill Communities.

Last month I attended the Camphill Symposium “Being Human in the Twenty-First Century: Toward New Thinking,” celebrating 50 years of Camphill in North America.  My goal was to explore Camphill communities as alternatives for the multitude of young adults with special needs graduating this year from our high schools, and for others in their twenties and thirties whose parents are aging and who languish at home without a social network or life skills.

The symposium brought together almost 100 folks from a variety of disciplines.  I met social thinkers, environmentalists, scientists and members of a dozen life-sharing communities who spoke passionately about their desires for collaboration and cross polination.

The Camphill community model is based on the teachings of the philosopher Rudolf Steiner (1861-1925).  Steiner’s philosophy melds body, mind and spirit to apply “spiritual science” to all aspects of life. The legacy of this true Renaissance man is an amazing array of accomplishments, including a worldwide network of Waldorf Schools, a farming system now known as Biodynamic agriculture, holistic medicine encompassing a broad range of complementary treatments, as well as art, architecture, and even ethical banking!  His writing, including about 30 books, was so prolific that no one even knows how many lectures he authored, but it is estimated to be well over 6000!  Today, his teachings are known as “Anthroposophy” and practiced around the world.

The Camphill movement was founded in the 1940s by an Austrian pediatrician and follower of Steiner, named Karl Konig.  Anthroposophists believe that every human being possesses a healthy inner personality that is independent of physical, developmental, cognitive or emotional disability.

The symposium took place at Camphill Village Kimberton Hills, PA, near Valley Forge, a vibrant farming and handcrafting community of about 100, including both neurotypical  individuals of all ages and 40 adults with developmental disabilities. At Kimberton Hills, Copake Camphill Village in New York, Heartbeet in Vermont, and Camphill Village Minnesota, as well as in Camphill communities worldwide, villagers live in small homes, learn vocations, eat what they grow, move, paint and live anthroposophy 24/7. Neurotypical adults and their families, including young children, support and care for each other, the land and the environment around them, following organic and biodynamic principles whenever possible.

Each day of the symposium had a theme.  Invited speakers presented to the group as a whole, and then intimate focus groups of mixed ages, abilities and disciplines fleshed out the subjects further. The conversational sessions were enhanced by an artistic activity of our choosing.  Offerings included pastel painting, poetry, clowning, eurhythmy (a form of therapeutic movement) or singing.  We dined together for lunch and supper in the newly renovated café on delicious locally prepared cuisine. I listened to and shared insights with some astounding people during these opportunities.

Shelley Burtt, the Executive Director of the Camphill Foundation, spoke of “robust inclusion.”  She believes that society needs to be more open and expand its thinking about what is “normal.”  This process includes finding a new vocabulary that does not pathologize, but rather is accepting of people with differences in abilities and knowledge.

Judith Snow, who despite being paralyzed from the neck down, concurred with Shelley, urging us to support inclusive, not exclusive communities. Judith, who has a master’s degree, fully participated in all symposium activities in her wheelchair, which she propels by blowing into a tube.  With the help of a personal assistant, she spoke passionately about the assets individuals like herself bring to communities.  As a life-long advocacy for the disabled, she calls herself a “social inventor,” in addition to being a sought after motivational speaker and visual artist.

Coleman Lyles, President of the Camphill Communities of California expertly and equitably facilitated the morning focus group in which I participated.  His lifetime experiences with and love of the Camphill model is palpable.  He understands the history of the movement and its roots, yet has a vision for its future, as well.  The session he monitored on “nature, nurture and technology” was memorable in that he helped the group see how these forces can live compatibly in today’s society.

Eugene Schwartz, a veteran consultant and expert on both Waldorf education and Camphill communities, was a member of my focus group.  He has labored for over 30 years to make Steiner’s work available to the public through his extensive website and teachings.  He believes in the power of Camphill to spin off new communities to meet the needs of today’s populations of adults with special needs.

Tom Stearns, President and founder of High Mowing Organic Seeds in Vermont, turned a seed-collecting hobby into one of the leading organic seed companies in the United States.  Tom agreed with Eugene, and spoke to Steiner’s sense of urgency, which frequently fueled his inspirations into action.  He described the Camphill communities as the seeds for future organic-based farms for the disabled.

Barton Kirk, a fellow Pittsburgher, with whom I traveled to Kimberton Hills, and shared my artistic experience painting with pastels, is an ecological engineer who plants other types of seeds.  His seeds are ideas that germinate into innovative solutions for water and waste problems.  Barton grew up with community supported agriculture (CSA) and interned at Camphill Kimberton Hills. Today he is focusing on interdependence instead of independence in his work.

Hannah Schwartz, (no relation to Eugene), the vibrant co-founder of the newest American Camphill community, Hearbeet, is a true breath of fresh air. She grew up at Kimberton Hills. The late Judith Bluestone, founder  of HANDLE, a sensory-motor program she developed, would be ecstatic to learn that Hannah has introduced the HANDLE method to several Camphill communities.  Accompanying Hannah to the symposium were several of her villagers, including an extremely appealing couple, both with Down syndrome.  Hannah recounted that each had lost over 100 pounds since moving to Heartbeet.  Both participated fully in the symposium, making relevant comments, reading poetry and socializing with others.  Their warmth, ingenuous curiosity and passion brought tears to my eyes. Hannah plans to expand Heartbeet to include young adults with autism in the near future. I hope to visit her this summer in my travels to New England.

Peter Bruckner, my extraordinary pastel instructor, is a multi-faceted artist who heightened my enjoyment of the symposium. While I signed up for “painting,” I did so with fear and trepidation. Peter made it so much fun that I went out and bought some pastels to share my new-found skills with my daughter and grand-daughter. Over Mother’s Day weekend, we spent a full afternoon painting.  In addition to teaching art at Camphill communities, Peter makes one-of-a-kind jewelry, writes poetry, paints, and is the founder of a touring marionette theatre. Peter’s huge heart extended to everyone at the symposium as he sprinkled his talents and humor among us.

Several non-profits are now focusing their attention on developing programs for adults with autism and related disorders.  The Autism Research Institute (ARI) has publishes a bulletin on the subject, and  The Autism Trust from the UK, has launched a United States initiative to establish franchised “Centers for Excellence”  in all 50 states and many other countries, a creating worldwide virtual campus adult community. DDR too is looking at alternatives. I strongly believe that restrictive, non-inclusive communities are counter to what I experienced  at Camphill.  I urge all of those involved in planning for adults to take a look at the Camphill model.  I think that once you see the love, respect and interdependent support in each unique community, you too will choke up with emotion.  For over 50 years Camphill’s success has spoken for itself all over the world. Why reinvent the wheel?

 

Picking Beans at Round Hill Park

September 19, 2010

 

 

I’d passed the sign hundreds of times:  “Round Hill Park.”  Some day I’ll check it out, I’d promised myself.  That day was last Tuesday.  I spent a gorgeous late summer morning and early afternoon picking organic beans.  Thousands of beans.  Fistfuls of beans.  Green, yellow and purple beans. 

Joining me were Bryan Ritti, farmer, and COO of FarmsCorps, Inc., a social enterprise created to support aging farmers, local food banks, and regional agriculture organizations.  This summer he and Chelsea Attwood have co-managed the farm operation at Allegheny County, PA’s Round Hill Park, an oasis south of Pittsburgh, just off of Route 51, near Elizabeth.  Bryan spent two years in a monastery, so the solitary life of a farmer is natural to him.  Like many of today’s new breed of young farmers, he is smart, dedicated and passionate about living  off the grid  and off the land.  For lunch he devoured raw kale on homemade almond bread and chased it with a just-off-the-vine super ripe tomato. 

Also picking was Lauren, an educator from the Outdoor Classroom. She is also a gleaner for the Greater Pittsburgh Community Food Bank, one of the lucky recipients of the bounty produced at Round Hill’s cultivated acre of fruits and vegetables. Organic kale, okra and string beans are a far cry from the rotten apples I saw the last time I volunteered at a local soup kitchen.  Thanks go to the Pennsylvania Association for Sustainable Agriculture (PASA) for this outcome.  PASA, one of the largest state organizations supporting farmers and a sustainable  lifestyle is remarkable also.  They provide mentors for young farmers like Bryan who have chosen farming as a vocation.

So why am I  spending a day picking beans?  First, it is a delightful way to soak up, instead of supplement, my deficient Vitamin D. Second,  Bryan and his contemporaries interest me because, I believe they hold the health of the next generation in their hands. 

Today’s new farmers live and breathe the mantra of “Eat fresh and local.”  My car sports a bumper sticker with that message.  In season food that has traveled only a short distance tastes better.  Food that comes from your neighbors supports your local economy.

Bryan and other twenty- and thirty-somethings are the parents of the next generation .  It is THEIR health that will determine the health of their children.  If they are toxic from pesticides, PCBs, phthalates, mercury, lead and aluminum, they will dump their personal toxic loads into their unborn children.  If they are health conscious, eating organic vegetables, using natural personal care products and cleaners, avoiding fish and other products with heavy metals and watching their electro-magnetic fields, their offspring will be healthy.  It’s that simple!

Bryan and his buddies have big plans. FarmCorps, a not-for-profit modeled on the Peace Corps and Americorps.  It collaboratively provides the critical labor needed for farmers to increase scale and diversity of production.  As a social enterprise project of New Sun Rising, FarmCorps serves local farmers while providing experiential learning and training opportunities in sustainable agriculture – from agri-tourism like the exhibit at Round Hill Park to farm succession. Crops produced in specialized FarmCorps programs are donated for public benefit as a part of FarmCorps’ aim to serve southwestern Pennsylvania through strengthening the local food system.

Inherent in FarmCorps’ mission is providing training and vounteer people power for the aging farmer families. Hopefully fewer will not have to yield to pressure of real estate developers to sell their family farms and succomb to suburban sprawl. With the lofty goal of providing services in all 50 states, FarmCorps is just getting organized.  When I suggested to Bryan that his farms would be viable potential homes for workers with autism, he lit up like a Christmas tree.  “Putting marginalized populations to work is one of our goals,” he said. 

In the next year, DDR is going to be exploring connecting with organizations  like FarmCorps to delve into opportunities for inclusion of adults with disabilities.  In addition, we will be meeting with trend analysts to determine how to connect with tomorrow’s parents to investigate avenues for educating them about having healthy babies. 

In the meantime, shop locally, eat seasonally, and enjoy the gorgeous fall weather.

Temple Grandin: A Real Inspiration for People with Autism

July 23, 2009

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Yesterday I had the pleasure of hearing Temple Grandin speak. Thank you to Community Health Connections for bringing her to Pittsburgh.  I have attended Temple’s talks a half dozen times over the past 20 years, and each time I am amazed at how she continues to develop her skills. 

As arguably the world’s most accomplished adult with autism, Temple spoke with minimal notes and a high level PowerPoint presentation for almost two hours.  She was funny, irreverent, passionate and articulate.  How awesome is that, given that once she was a non-verbal, temper-driven child who sought solace in her relatives’ cattle brander to comfort herself? 

While pacing back and forth and waving her arms at times, Temple covered a good number of subjects:

  • How imprecise and meaningless labels are in helping those with autism
  • How “brains with problems” have sensory issues that sometimes look like “bad behavior. Maybe it’s those flickering lights, memory of the sound of a fire alarm or an itchy t-shirt.
  • How medical problems such as constipation, toothaches and yeast infections can also cause behavior problems.
  • Helpful accommodations for those with visual and auditory processing problems such as using colored paper or tinted/prism lenses, incandescent instead of fluorescent light bulbs, and wearing a hat.
  • Why we have to return to the practice of expecting even our most disabled children to take turns and do chores. Play board games and walk the dog, she advised.
  • Why hobbies and clubs are essential for learning social interactions. Chess, rockets, video games give kids something to talk to each other about.
  • Why she prefers aerobic exercise, deep pressure, special diets and omega 3 fats to medications with untold side effects. She is now taking probiotics and EFAs in addition to her “old-fashioned” meds for anxiety. 
  • The differences among the different classes of drugs, and why she is opposed to labeling and drugging very young children.
  • Possible successful careers for individuals at both ends of the spectrum.

Temple believes that too many of today’s teens and young adults with Asperger’s  are unemployed and unemployable because they have not had the advantages she did.  While she hated what she calls her “Miss Manners” lessons, she now recognizes their role in teaching her not to swear, make fun of overweight people, dress neatly, and chew with her mouth shut.  She related that she was over 30 before she understood why she had to so something to please others.

If you are unfamiliar with Temple’s story, I strongly recommend reading Emergence: Labeled Autistic, her early story, and Thinking in Pictures, written later in life.  Her latest biography is The Way I See It:  A Personal Look at Autism & Asperger’s.  Her love of animals, which led to her career as the world’s foremost animal handler, is palpable in her Animals in Transition and her newest book, Animals Make Us Human.  More information on these and her work are available at www.grandin.com.

Thank you, Temple for all you do to help those with autism.  Giving you a copy of my book EnVISIONing a Bright Future, and shaking your hand yesterday was a real thrill.  After I unthinkingly and spontaneously extended my hand, I did not know whether to withdraw it quickly or wait.  When she took it and gave me a hearty shake, I thought, “WOW!” What a long road she has traveled!

 

Judith Bluestone HANDLE

March 7, 2009

Owner wrote:

HANDLE Founder Judith Bluestone Passes Away

On February 18, 2009, the world lost an amazing woman.  Judith died at the age of 64, in Atlanta, GA, where she had lived for the past several years. She is survived by her son and sister, and by thousands who very personally feel the loss of her from their lives.

Judith Bluestone was an internationally renowned specialist in neuro-developmental disorders and learning challenges. As an intuitive healer and educator, she had remarkable gifts for enabling function in herself and others.  

Judith dedicated her life – heart and soul – to the creation and expansion of The HANDLE® Institute in Seattle, WA, which she founded in 1994, the same year I co-founded DDR.  I first met her soon after we both started our organizations, and realized that we were definitely “on the same page.”  I was humbled by how Judith had experienced many of the same issues as her clients: autism, seizures, constant pain, and hypersensitivities, and was applying what she had learned about healing herself to others.   In the end her efforts became overwhelming.

Judith spread awareness of HANDLE® around the world. Just looking at her course schedule would exhaust the average educator: Australia, Canada, Czech Republic, Hong Kong, India, Israel, New Zealand, South Africa.  Bluestone created the Holistic Approach to NeuroDevelopment and Learning Efficiency (HANDLE®) in the 1980’s and through the Institute, trained and certified over 125 individuals as Practitioners and Screeners of the HANDLE® program.  Go to www.handle.org to view the schedule of courses the Institute is offering, and attend one if you have never experienced HANDLE®

Judith received much acknowledgement for her achievements.  In 2004, she won the Jefferson Award in Seattle, and then the national Jacqueline Kennedy Onassis Award for community service. 

I met with Judith in Atlanta last year at her home office and therapy studio.  She and I reminisced about how some of the “new” therapies are reincarnations of ones we practiced in the 1960’s, and shared our excitement about the strides we have made in the 40 years we have been helping children with special needs. We spoke of collaboration and perhaps a joint conference with DDR and HANDLE®, with the two of us as keynote speakers.  Alas, that will never be.

Judith left The HANDLE® Institute in Seattle in capable and loving hands, and it will continue the work she began. If you would like to do something in honor of Judith, please share your knowledge of HANDLE with anyone you know who might benefit from it. Or make a non-tax-deductible donation to The HANDLE Institute International, LLC to support the Institute or to The Churkendoose Project, a nonprofit organization whose mission it is to provide opportunities for many to experience the benefits of HANDLE. The Project’s contact information can be found at www.churkendoose.org.

The HANDLE Institute has set up an email for you to send your questions, thoughts and memories about Judith. Please share them at HANDLEassist@gmail.com.

 

 

 

 

 

 

Radio Interviews – Listen in!

July 31, 2008

I have just completed three radio interviews about my new book EnVISIONing a Bright Future. What fun it is being on the “other side” of the table after a year as interviewer on Autism One Radio.  It’s amazing how much you can fit into a half hour with a good show host.  I was fortunate to be interviewed by the BEST!

First was on May 28th, with DC area nutritionist, Dana Laake, a long time DDR supporter and friend.  Dana’s show, “Essentials of Healthy Living™” is broadcast live Wednesday nights 5-6 pm on 1260 AM in the Washington, DC area.  If you are not in range, you can listen online at www.progressivetalk1260.com . This show is sponsored by The Village Green Apothecary in Bethesda, MD, another long time friend of DDR. Look in your new 2008 DDR Directory, which you should receive next week, for a discount coupon for nutritional supplements from the Village Green.  They also have copies of my book for sale. To listen to my interview, click on http://ehlradio.com/ArchivedShows/Index.htm

On July 9th, I was jointly interviewed by Chiropractor Larry Bronstein and Special Educator, Deborah Alecson, of CHILD Treatment and Consulting Services, on WBCR, 97.7 FM in Great Barrington, MA for their program, “Food For Thought: Children, Nutrition and Learning.”  We had a lively hour-long discussion of the various treatment options described in my book.  Since the station does not archive shows, I have the program on a CD.  As soon as I figure out how to upload it, I will put the link here.

For the above two interviews I simply dialed a phone number, and was magically broadcast live on the airways.  For my third interview, on July 23rd, I drove to Pittsburgh’s South Side to the studios of the Radio Information Service, a radio reading service for people with visual and physical disabilities.  There I was greeted warmly by Marilyn Egan, the host of ‘Towntalk,” who fitted me with a microphone and showed me how to use the “cough box,” should I feel the urge.

I had met one of the show’s co-producers, Joyce Driben, at a Disabilities Awareness Fair at PNC Park one beautiful evening in June, when the Pittsburgh Pirates honored individuals with all types of disabilities. Sight-impaired, Joyce had used a special machine to write down my phone number in Braille, and had her co-producer Jeanne Kaufman call me to set the date for my interview.  Radio Information Service (RIS) has been reading all types of print materials from newspapers to magazines, advertisements, books, death notices, and even TV listings to people with eyesight loss due to many causes for over 30 years. Qualified listeners can tune in for a small fee.  To listen to Joyce’s targeted interview of me, go to www.readingservice.org Click on “Listeners” and log in with the User Name: volunteer, and the Password: guest05.  Then click on Towntalk to hear the archived show.

I thank all those who have made these interviews possible and would be happy to do any others.  Please let me know if you have access to other opportunities.


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